A couple of weeks ago, we were put on hold after days of planning and preparation to begin a tube wean after Brenna’s skin tested positive for strep and the arthritis in her hands was at its worst. There was a lot of pain, not much sleep and we knew we would be set up for failure to try to cut off her food supply at that time.
In a way, I’m glad that we held off – not simply from a health standpoint for her, but from a personal standpoint. Now, I am less nervous. Now, I feel really ready.
I am looking ahead, and I am feeling hopeful. The thoughts of the stress of this experience and the intense adjustment that this is going to bring for all of us are being trumped by the thoughts of Brenna eating. Thoughts of us eating together as a family. Thoughts of us traveling this summer without coolers full of blended foods. Thoughts of Brenna wearing adorable clothes that don’t have snaps for access to her tummy. In fact, I even went out and bought a couple of sleepers that zip up and outfits that tuck in, to celebrate.
Today brings a culmination of all of those thoughts of both stress and celebration to the surface. Today is the first day of…
And I’m hoping that very soon I will be able to show you photos of Brenna with food all over her face after a big meal!