Girlfriend likes spice and flavor. Pizza is a top choice, and meats are a favorite, too. Any meats, really - pepperoni, roll sausage, summer sausage, turkey, ham, beef, chicken. Which is fantastic for protein and, in many cases, calories too.
She's a salt fan, and still likes her chips and crackers. Dry cereal is slowly sneaking its way into her diet, and we're working hard on sweets and drinking. Fruits, yogurt, etc… forget it. And likewise for any more than a few sips of anything. But I'm confident that will come.
For the first time, Brenna is drinking out of a straw. She's closing her mouth around it, and sucking up the liquid, which is HUGE.
However, the weight loss is heavy on our success right now. She's still dropping weight, and doesn't have much longer before we hit our maximum loss number.
But that doesn't deter my excitement, because Brenna is eating so well that I think our lives will continue moving forward with eating, regardless if we have to start adding more tube feedings back in. She likes to eat, and she wants to eat, and she asks to eat. And anyone who deals with feeding issues will vouch for how important those things are.
We now include her order in the drive-through lane, we pack up snacks to take when we go out, and we have family meal times. Real family meal times, that don't include syringes and tubing. Those tiny things have been life-changing for me within Brenna's care. Those tiny things have been one more step toward the land of "we can do this" and "it's going to be OK."
In other health-related topics, we are two weeks in to treating Brenna for juvenile arthritis in her hands and feet. It already seems to be helping slightly, though there is still so much swelling, but there is seemingly less pain too. We're hoping and expecting to see a lot more improvement in coming weeks, and with that, improvement in her walking and physical activities, as it's obvious that many activities are uncomfortable right now.
Overall… our house is much happier right now. Brenna is sleeping much better, and therefore her parents are sleeping much better, and she's feisty and giggly. She still wants to be my sidekick 24/7, which can be exhausting, but I also love our bond.
Some happy moments from last week…
my little laundry helper
More smiles around our table at meal time these days
Connor wanted glasses like Brenna, so he found this pair in our dress-up box. He calls them his "reading glasses."
The start of swimming lessons!
And, finally, nothing says "Happy Monday" like this picture!